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Kaitlyn's avatar

Hi just curious if you had spasticity in your calf because the FES kind of works against me because the spasticity in my calf resists it! My anterior tibialis and peroneal fire at this point!

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Jesse's avatar

Hey! I have clonus which I think is pretty similar. The FES can be hit or miss with that and while I do think it helped me early on, I think what made the biggest difference was doing the same exercises thousands of time. You could try using the FES just for small or really slow movements and then focus more on the repetition of the exercises if that works better for you. I think that's what really moved the needle for me. I also noticed my clonus was more activated if I was really tired. Not sure if it's the same for you, but I treated the FES very situationally and used it whenever it made the most sense vs. trying to force it.

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Kaitlyn's avatar

Okay yes this is the exact same thing! I have spasticity with clonus. Like the fes doesn’t really help when it comes to dynamic movement just like you said because it gets fought and pulled away from the spasticity (clonus), it goes all the way up but soo delayed. I agree doing the reps is so much better for me at this point since everything is firing. Did you get any injections or anything for the spasticity? And I guess the final question do you still have it after all the years haha.

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Jesse's avatar

No injections unfortunately, I wasn't offered them from my original hospital although I think maybe that would have been helpful. I still have it, but it's a lot more manageable now. If it starts spazzing, putting pressure on my foot usually stops it (like putting my foot down while pushing a little harder into the ground if you know what I mean). I try to adjust my running around this and run by landing differently and putting more pressure on my right side to account for it. It still not "normal" but I can get it done this way at least

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